The girl with a will to live: the love, hope and pain of raising Elsie

She was born with an ultra-rare genetic disorder. After my decades working in film PR, I now face the biggest campaign of all: the fight for her life

The girl with a will to live: the love, hope and pain of raising Elsie

TL;DR

  • The author has decades of experience in film PR.
  • They are now engaged in the most significant campaign of their life.
  • This campaign is a fight for their child's life.
  • The child was born with an ultra-rare genetic disorder.