A woman went to "hell and back" before her rare disease diagnosis. Then she saw the same symptoms in her sister.

TL;DR

Megan Kaverman suffered from undiagnosed symptoms like weight gain, shortness of breath, and fatigue for years.
Doctors repeatedly dismissed her concerns, attributing them to her age or weight.
In 2016, at age 27, Kaverman was diagnosed with heritable pulmonary arterial hypertension after an ICU stay.
Kaverman later noticed similar symptoms in her sister, Katie Gusching, prompting Gusching to seek medical advice.
Gusching was also diagnosed with heritable pulmonary arterial hypertension, with Kaverman's advocacy being crucial.
Heritable pulmonary arterial hypertension is a rare genetic disorder causing lung artery narrowing and high blood pressure.
While incurable, the condition can be managed with medication and treatment, with both sisters receiving care at Cleveland Clinic.
Kaverman and Gusching are now advocates, raising awareness for pulmonary hypertension.

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