health
Experience: I died on my 44th birthday
The day I was diagnosed with motor neurone disease, I knew my life would end with euthanasia
TL;DR
- Diagnosed with ALS (motor neurone disease) at 41, leading to paralysis.
- Undertook a year-long world tour funded by life and income protection insurance.
- Experienced worsening symptoms including nerve pain, swallowing, and breathing difficulties.
- Chose euthanasia on his 44th birthday (April 20th) to say goodbye while he could still speak.
- His friends and family were supportive and respectful of his decision.
- Followed principles of not doing to others what you don't want done to you and focusing on controllable aspects of life.
- Lived a fulfilling life, pursuing art and traveling.
- Organized a large party the day before his death.
- Believes in 'from dust, to dust' and has no proof of an afterlife.
- Marc Girod died on April 20, 2026.